{"countAll":0,"orderType":null,"readLevel":"0","lyTopicReq":{"id":"2461","isDel":0,"createAt":0,"createBy":null,"createName":null,"updateAt":0,"updateBy":null,"updateName":null,"userId":null,"title":null,"content":null,"barId":"2461","topicTypeId":null,"topicThemeId":"1032","readLevel":0,"files":null,"clickNoLikeCount":0,"clickLikeCount":0,"clickCount":0,"score":0,"partCount":0,"replayCount":0,"publishStatus":0,"publishTime":0,"isCream":null,"canReply":0,"shareUrl":null,"foodCouponVal":0,"emailNotice":0,"permission":0,"zlyShare":0,"status":0,"sort":0,"highlight":0,"highlightEffectTime":0,"digest":0,"digestEffectTime":0,"top":0,"topEffectTime":0,"closed":0,"stamp":0,"icon":0,"bgcolor":null,"fontcolor":null,"favtimes":0,"isAdopt":0,"adoptId":null,"sortDate":0,"metaSearch":null,"rn":null},"lyBarModerators":{"list":[],"list4Map":null,"pageBegin":0,"pageSize":8,"pageNumber":0,"totalPage":0,"totalRow":0},"metaSearch":{"description":"为病友提供:血管炎论坛_病友交流平台_病友论坛等相关信息，让病友在便捷的求医路上不花一分冤枉钱。","keywords":"血管炎论坛_病友交流平台_病友论坛","title":"血管炎论坛_病友交流平台_病友论坛","channels":null},"data":{"list":[{"id":"12406","isDel":0,"createAt":1518075826308,"createBy":"8b39c578b53311e7a3d800163e04584d","createName":"梅油油","updateAt":0,"updateBy":null,"updateName":null,"userId":"8b39c578b53311e7a3d800163e04584d","title":"结节性血管炎怎么治疗 能痊愈么","content":"

我有个朋友前段时间得了结节性血管炎，症状是小腿肿胀且后侧出现多处红斑，我在网上看了很多资料都说病因很多，但是也没有确切答案，我就想知道现在一直服用激素能够使病情好转么，除了使用激素外有其他有效治疗的办法么，而且应该注意些什么？


\"结节性血管炎怎么治疗

 

匿名回答：这算是一种免疫系统疾病，就是不一样造成你免疫力低下的原因积累一段时间都可能导致这个病，比如身体和心理上长时间的压力、久坐缺乏锻炼等。关于这个治疗的问题，我来说下自己的经历给点建议吧。

 

我的病也是突然发生的，就是因为工作上长期的压力还有生活上心理上长期的压力导致的，刚开始是个小红点，没有在意，几次复发之后脚踝关节上下越来越多的结节，起初医生是开一些激素类的药，内服外用断断续续治疗了一年，没有控制住，之后看的中医，内服和外洗的中药，两年内也没有任何效果，一不注意还是会复发，再然后生活上发生了一些事情，很多想法有了变化，就自己停了所有的药，自己开始给自己调理，现在不到一年的时间，也有了明显的好转，除了以前结节留下的印子以及之前严重的地方还能摸到一点点结节，离痊愈的路不远了。希望我的方法能给你一点帮助：

 

1. 每天一定要按时休息，而且保证足够的睡眠休息时间。

 

2. 吃的东西一定注意，肉类只吃猪肉（新鲜的排骨廋肉偶尔吃下五花肉）、牛肉（新鲜的廋肉）、鱼肉（就是最常见的鱼，海鱼和鲫鱼鲤鱼都不能吃），多吃蔬菜（新鲜的绿色蔬菜，加工过的一律不吃包括豆腐）、而且再也不在外面吃东西，除了偶尔公司聚餐之外每天都是自己在做饭，除了油盐少量酱油少量生姜外其余调料一概不用，盐也是少吃、生姜晚上不吃。

 

3. 而且只要有时间每天晚上坚持用热水加一点食盐泡脚（也适当加几片生姜，但我一般就加食盐因为方便），水温35~40度，泡20分钟左右，泡完用毛巾擦干，注意让脚不要受凉。

 

4. 心态保持平和，对工作对他人都别过分要求，遇到别的什么事也告诉自己不要生气不要激动，因为只有这样的话身体和心理才可以得到足够的休息。

 

就是因为生病我起码有3年夏天都是穿长裤度过的，我想明年夏天我就可以穿丝袜了，这个病彻底坏了我的生活，但也让我重生了，虽然过程很艰辛，但是我真的还是喜欢现在这个状态的自己。

 

希望我的病历路程能给你帮助，也更希望你的朋友可以尽快康复。其实这个病真都没有什么，怎么得的就怎么根治，心态好才能生活的好。


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在我19岁那年，小腿处会疼，也不知道是怎么弄得，刚开始是出暗红色的红斑，然后发硬，最后破裂，以为是皮肤病，所以在当地医院就治好了，但是22岁那年又复发了，当时就去了上海当地一家医院验血，做了活检，确诊白细胞破碎性血管炎，一开始用雷公藤，无效，最后改用激素强的松，效果还是很不错字的。

 

\"我被确诊为白细胞破碎性血管炎\"


之后三五年里面，每一年都是会出现的，只要出现我就买了点强的松，一吃还是会好点。当时不知道强的松是激素，在这短短几年，我就变成了胖子，副作用太大了，之后我就害怕强的松，再也不吃了，然后又一次遇到个中医，我说了我的情况，他让我吃血塞通看看，我抱着试试看的希望，没想到有效果。

 

在30岁那年又复发了，我就去了上海一家医院，我想看看，我的病发展成什么样子，医生开了全面检查，所有抗体成阴性，双肢血管造影血管没有狭窄，很开心，医生说我就是单纯的皮肤性的血管炎，就开了一瓶沙利度胺片。在这以后的一段时间，从来都没有再发过，我现在38岁了，我在上海开一家店铺，和正常人是一样的，我现在终结一个经验，就是当出现症状时，立即吃药。血塞通，帕夫林，都是还不错的，千万不可以让它破裂，破裂就很麻烦，破裂就要吃强的松，所以，千万不能破裂，整整十几年了，只要大家遇到白细胞破碎性血管炎，可以问我，我可以用我的过程来帮助大家，谢谢了。


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白细胞碎裂性血管炎这个病，我在好多地方医治过都没有好，有的治疗方案吗?

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前期手指发麻，逐渐十手指肿，发黑、有两指头干黑坏死，疼痛难忍，无法入睡

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女,30岁。吃了一段时间激素，后改吃中药，现在偶尔还会发一些皮下出血

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我是常州人，在常州人民医院检查了是血管炎，医生说不能根治，是否有好的方法

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昨天刚重山西省眼科医院拍眼部cT，门诊大夫说左眼后面全是肉芽，肉芽在生长，病人痰里有血丝，疼人眼疼痛难忍，请问有什么好的治疗方法

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