{"nowTime30":1777547184748,"lyBarModerator":null,"metaSearch":{"description":"我是一名血友病人、比较严重、一年有半年都躺在床上…我才19岁、我很迷茫、不知道自己将来如何生活、没有出路。血友病人适合做什么工作，我怎么养活自己啊！","keywords":"血友病人适合做什么工作_洞医","title":"血友病人适合做什么工作_洞医","channels":null},"identificate":{"id":null,"isDel":0,"createAt":0,"createBy":null,"createName":null,"updateAt":0,"updateBy":null,"updateName":null,"userId":null,"realName":null,"certifiedStatus":0,"phone":null,"email":null,"hospitalId":null,"departmentId":null,"illName":null,"illId":null,"cardType":0,"cardImg":null,"idCardImg":null,"identityType":0,"stop":0,"departmentName":null,"hospitalName":null},"canEdit":null,"adList":[],"lyBar":{"id":"2200","isDel":0,"createAt":1483430440782,"createBy":"system","createName":"system","updateAt":0,"updateBy":null,"updateName":null,"userId":null,"name":"血友病","type":102,"twoCode":"http://zhao01.com/zly_img/zly_wx.jpg","image":null,"provinceId":null,"cityId":null,"illId":"766cfee0bb5f11e6a61c00163e04584d","hospitalId":null,"keyWord":null,"totleTopic":0,"barDesc":null,"discussBarType":null,"metaSearch":"{\"channels\":{\"病友社区\":{\"description\":\"为病友提供:血友病论坛_病友交流平台_病友论坛，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"血友病论坛_病友交流平台_病友论坛\",\"title\":\"血友病论坛_病友交流平台_病友论坛\"},\"治疗\":{\"description\":\"为您提供:血友病应该怎么治疗_血友病的治疗方法_血友病治疗的最好办法等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"血友病应该怎么治疗_血友病的治疗方法_血友病治疗的最好办法\",\"title\":\"血友病应该怎么治疗_血友病的治疗方法_血友病治疗的最好办法\"},\"症状\":{\"description\":\"为您提供:血友病症状有哪些_血友病初期是什么症状_血友病主要症状等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"血友病症状有哪些_血友病初期是什么症状_血友病主要症状\",\"title\":\"血友病症状有哪些_血友病初期是什么症状_血友病主要症状\"},\"并发症\":{\"description\":\"为您提供:血友病的危害_血友病后遗症_血友病并发症等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"血友病的危害_血友病后遗症_血友病并发症\",\"title\":\"血友病的危害_血友病后遗症_血友病并发症\"},\"饮食\":{\"description\":\"为您提供:血友病饮食禁忌_血友病吃什么好_血友病不能吃什么食物等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"血友病饮食禁忌_血友病吃什么好_血友病不能吃什么食物\",\"title\":\"血友病饮食禁忌_血友病吃什么好_血友病不能吃什么食物\"},\"病因\":{\"description\":\"为您提供:血友病是什么病_血友病怎么得病_血友病的发病机制等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"血友病是什么病_血友病怎么得病_血友病的发病机制\",\"title\":\"血友病是什么病_血友病怎么得病_血友病的发病机制\"},\"病友求助\":{\"description\":\"为您提供:血友病来月经_血友病能结婚吗_血友病怎么止血等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"血友病来月经_血友病能结婚吗_血友病怎么止血\",\"title\":\"血友病来月经_血友病能结婚吗_血友病怎么止血\"},\"预防\":{\"description\":\"为您提供:血友病的预防_如何预防血友病_血友病的预防与优生等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"血友病的预防_如何预防血友病_血友病的预防与优生\",\"title\":\"血友病的预防_如何预防血友病_血友病的预防与优生\"}},\"description\":\"为您提供:血友病是什么遗传病_血友病症状有哪些_血友病能治好吗_血友病病友的治疗经验等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"血友病是什么遗传病_血友病症状有哪些_血友病能治好吗\",\"title\":\"血友病是什么遗传病_血友病症状有哪些_血友病能治好吗\"}","adInfo":null},"isLikeThisTopic":null,"lastTopics":[{"id":"7630","isDel":0,"createAt":0,"createBy":null,"createName":null,"updateAt":0,"updateBy":null,"updateName":null,"userId":null,"title":"怎么预防血友病方法","content":"


血友病是一种常见的遗传性疾病。那么你知道日常生活中，怎么预防血友病方法呢?


　　血友病的预防：

 

\"怎么预防血友病方法\"


　　1、禁服使血小板聚集受抑制的药物，如阿司匹林、保泰松、潘生丁和前列腺素E等。

 

　　2、避免对患者进行静脉注射及肌内注射;

 

　　3、调情志：精神刺激可诱发出血;

 

　　4、一旦由外伤或其他原因引起出血，要及时处置，这样引起的并发症后遗症会较轻;

 

　　5、若需手术，必须在手术前按血浆Ⅷ：C水平及手术大小、部位，把Ⅷ因子提到替代治疗效果;

 

　　6、血友病是一种遗传性疾病，患者本人及家属懂得优生优育的道理，若产前羊膜穿刺确诊为血友病，应终止妊娠以减少血友病的出生率。


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血液病病人血液中的白细胞数目往往较少或贫血，如粒细胞缺乏症、再生障碍性贫血等病人，由于抵抗力低，容易患感冒、支气管炎、肺炎等，故在饮食选择上更要注意，确保营养的补充。

 

血液病患者应当吃的食物：

 

\"血液病患者的饮食注意事项\"


1、蛋白质类：如豆类，包括各种豆制品、蛋类、鱼类、肉类（猪肉、羊肉、牛肉、肝）、家禽、坚果等。这类食物是蛋白质的主要来源，同时还含有维生素B族及铁等；　　

 

2、乳类：包括所有的乳制品如全奶，脱脂奶、奶粉、炼乳、乳酪、干酪等。乳类食物是蛋白质，维生素A、B族和钙的重要来源；

 

3、蔬菜水果类：包括所有的水果及果汁、蔬菜，这类食物能供给人体所需要的维生素及矿物质；

 

4、米面类：包括米饭、各种面食、面包、饼干等。这类食物为人体提供碳水化合物、维生素B族和铁；

 

除上述四类基本食物外，每天还应当摄入适当的脂肪或油类，以供给人体热量和维生素E。至于维生素和矿物质，在没有明显缺乏的情况下，不应服用，尤其是脂溶性维生素A、D、E和K，用量过多会沉积在组织中不能排出，造成中毒，所以说饮食中营养搭配很重要。


　　除上述四类基本食物外，每天还应当摄入适当的脂肪或油类，以供给人体热量和维生素E。至于维生素和矿物质，在没有明显缺乏的情况下，不应服用，尤其是脂溶性维生素A、D、E和K，用量过多会沉积在组织中不能排出，造成中毒，所以说饮食中营养搭配很重要。


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血友病是一种常见的血液疾病。那么你知道关于血友病有哪些并发症呢？

　

\"血友病有哪些并发症\"


　　1. 肝脏病变：HCV，HBV感染发展成慢性活动性肝炎，慢性迁延性肝炎(50%)，肝硬化(10%-20%)，肝癌发生率高于一般人群30倍。肝功能衰竭已成为血友病患者死亡的不可忽视的原因之一。HCV治疗同非血友病患者的肝炎，α干扰素及病毒唑合用，约1/2获得长期缓解。国外对少数失代偿性肝硬化血友病患者进行肝移植，移植的肝脏产生一定的FVIII或FIX，因此血友病同时得到改善。少数患者HCV合并HIV感染，治疗棘手，死亡率大大增加。

 

　　2.获得性免疫缺陷病(AIDS)：1978-1985年，90%重型HA感染HIV，AIDS成为血友病死亡的主要原因(占65%)。HIV感染引起继发性免疫缺陷，卡波氏瘤增加200倍，非霍奇金淋巴瘤增加29倍。1985年以来，随着严格献血员筛选，病毒检测及病毒灭活技术(加热法，有机溶剂加表面活性剂，亲和层析法，二步法病毒灭活)的不断改进，现已基本消除感染HIV的危险，血制品的安全性与有效性得到大大提高。治疗同其它非血友病AIDS患者。


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儿子八岁，因为附近的医疗机构都不愿意为儿子注射，怕担风险，每次都不能及时为孩子注射。非常头疼，怎么为孩子注射或者有哪些学习途径。

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\"血友病可怕吗，具体症状有哪些\"

 

出血是血友病的主要临床表现，患者终身有自发的、轻微损伤、手术后长时间的出血倾向，重型可在出生后既发病，轻者发病稍晚。

 

1、皮肤、粘膜出血

 

由于皮下组织，齿龈，舌，口腔粘膜等部位易于受伤，故为出血多发部位，幼儿多见于额部碰撞后出血、血肿，但皮肤，粘膜出血并非是本病的特点。

 

2、关节积血

 

关节出血是血友病A患者常见的临床表现，常发生在创伤/行走过久、运动之后引起滑膜出血，多见于膝关节，其次为踝，髋，肘，肩，腕关节等处。

 

3、肌肉出血和血肿

 

在重型血友病A常有发生，多在创伤/肌肉活动过久后发生，多见于用力的肌群。

 

4、血尿

 

重型血友病A患者可出现镜下血尿或肉眼血尿，多无疼痛感，亦无外伤史，但若有输尿管血块形成则有肾绞痛的症状。

 

5、假肿瘤（血友病性血囊肿）

 

囊肿可以发生在任何部位，多见于大腿，骨盆，小腿，足，手臂与手，也有时发生于眼。

 

6、创伤或外科手术后出血

 

各种不同程度的创伤，小手术都可以引起持久而缓慢的渗血或出血。

 

7、其他部位的出血

 

消化道出血可表现为呕血，黑便，血便或腹痛，多数患者存在原发病灶如胃，十二指肠溃疡；咯血多与肺结核，支扩等原发病灶有关；舌下血肿可致舌移位，若血肿向颈部发展，常致呼吸困难；颅内出血常是血友病患者的死因。


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血友病是一种遗传性疾病。那么你知道关于血友病的治疗方法有哪些呢？

 

\"血友病治疗大全有哪些\"


　　一、局部止血治疗：

 

　　包括局部压迫、放置冰袋、局部用血浆、止血粉、凝血酶或透明胶海绵贴敷等。

 

　　二、替代疗法。

 

　　(一)输血浆：

 

　　为轻型血友病的首选有效疗法。新鲜血浆和新鲜冰冻血浆含有所有的凝血因子。故对严重出血，必须用因子Ⅸ浓缩剂。

 

　　(二)冷沉淀物：

 

　　所含因子Ⅷ较新鲜血浆高5~10倍。须冷冻干燥存于-20°C下，室温下放1小时活性即丧失50%，故应于1小时之内输完。

 

　　(三)中纯度因子Ⅷ制剂已被广泛用于临床。

 

　　(四)凝血酶原复合物浓缩剂。

 

　　三、肾上腺皮质激素：

 

　　改善毛细血管通透性，对控制血尿、加速急性关节积血的吸收及对有Ⅷ因子抗体的患者有一定疗效，可与输血浆及浓缩剂合用。

 

　　治疗血友病的原则就是上面所介绍的几点，希望我们都能遵循这些治疗原则，这样才有利于患者的病情。


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白血病病因有哪些，这是很多白血病患者都比较关心和在意的问题，白血病的发病会对我们的身体造成伤害，但是大家对于白血病的病因有哪些这一问题还是比较感兴趣的，所以今天就为大家简单的介绍一下。



\"血友病病因\"


血友病是一组先天性凝血因子缺乏，以致出血性疾病。先天性因子Ⅷ缺乏为典型的性联隐性遗传，由女性传递，男性发病，控制因子Ⅷ凝血成分合成的基因位于X染色体。患病男性与正常女性婚配，子女中男性均正常，女性为传递者;正常男性与传递者女性婚配，子女中男性半数为患者，女性半数为传递者;患者男性与传递者女性婚配，所生男孩半数有血友病，所生女孩半数为血友病，半数为传递者。约30%无家族史，其发病可能因基因突变所致。

　　

因子Ⅸ缺乏的遗传方式与血友病甲相同，但女性传递者中，因子Ⅸ水平较低，有出血倾向。因子X1缺乏，均导致血液凝血活酶形成发生障碍，凝血酶原不能转变为凝血酶，纤维蛋白原也不能转变为纤维蛋白而易发生出血。


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您好，这个不用很担心的，我也缺九因子，程度在中上，小学的时候出个早操都能把脚踝弄出血，第二天就要请假，以至于我初中毕业就没在文校了，然后去了浙江的育英体校，读了六年，也很坎坷，现在工作了。我是厨子，很少发病，只是三四个月会脚踝出点血，也是少量的，吃吃药就好了。以前检查凝血功能的时候还不是觉得没救了。怎么说呢，我说这么多是觉得，自己要有信心，经常健身，慢慢来嘛，条件可以的话还可以备一点人造凝血因子，那个能管好几个月，这几个月就好好健身，只要体质好，基本上很少自发性出血，不管你的程度严不严重。


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您好，这个不用很担心的，我也缺九因子，程度在中上，小学的时候出个早操都能把脚踝弄出血，第二天就要请假，以至于我初中毕业就没在文校了，然后去了浙江的育英体校，读了六年，也很坎坷，现在工作了。我是厨子，很少发病，只是三四个月会脚踝出点血，也是少量的，吃吃药就好了。以前检查凝血功能的时候还不是觉得没救了。怎么说呢，我说这么多是觉得，自己要有信心，经常健身，慢慢来嘛，条件可以的话还可以备一点人造凝血因子，那个能管好几个月，这几个月就好好健身，只要体质好，基本上很少自发性出血，不管你的程度严不严重。


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我是一名血友病人、比较严重、一年有半年都躺在床上…我才19岁、我很迷茫、不知道自己将来如何生活、没有出路。血友病人适合做什么工作，我怎么养活自己啊！

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