{"nowTime30":1780233425197,"lyBarModerator":null,"metaSearch":{"description":"群里有没有，胶质瘤晚期不吃不喝，那种状态的病人啊，我家爸爸就是不吃，我爸爸几乎都到了后面了，吃东西都不行，就是喉咙有痰，医生说吞咽功能也有问题，关键是他自己又不配合我们，我还爸爸我感觉好特殊，不知道轻重，听不懂他说话还打人，嘴巴吃东西也不利索，感觉就像是他自己不能支配自己的言行一样","keywords":"胶质瘤晚期不吃不喝_洞医","title":"胶质瘤晚期不吃不喝_洞医","channels":null},"identificate":{"id":"5a3adeaa985911e8972100163e0462f1","isDel":0,"createAt":1533437016805,"createBy":"8abb11d0af1511e7a3d800163e04584d","createName":"良药苦口","updateAt":0,"updateBy":null,"updateName":null,"userId":"8abb11d0af1511e7a3d800163e04584d","realName":"周鑫","certifiedStatus":2,"phone":"15525873223","email":"langlixunta@163.com","hospitalId":"14629","departmentId":"2035","illName":"","illId":"ac6f137def9411e7a3d800163e04584d","cardType":1,"cardImg":"http://01luntan.com/ly_img/1533437073284.jpg","idCardImg":"","identityType":2,"stop":0,"departmentName":"内分泌科","hospitalName":null},"canEdit":null,"adList":[{"id":"ba12d7c45aea11eaa47600163e0462f1","isDel":0,"createAt":1582977477879,"createBy":"sys","createName":"system","updateAt":0,"updateBy":null,"updateName":null,"name":"【胶质瘤解密】解放军总医院精彩讲解","image":"http://www.01luntan.com/ly_img/admin-fa032a53-837b-467e-b160-dd56aaeaa43f.jpg","url":"https://item.taobao.com/item.htm?spm=a2oq0.12575281.0.0.25911debW42Sos&ft=t&id=572617349581","type":2,"webType":2,"sortNo":5,"dataRelType":1,"dataRelId":"1337"},{"id":"c4666b855aed11eaa47600163e0462f1","isDel":0,"createAt":1582978783698,"createBy":"sys","createName":"system","updateAt":0,"updateBy":null,"updateName":null,"name":"儿童胶质瘤病友群","image":"http://www.01luntan.com/ly_img/admin-3858f059-5da0-4909-a424-7643e13285c7.png","url":"https://jq.qq.com/?_wv=1027&k=52CVy5l","type":2,"webType":2,"sortNo":4,"dataRelType":1,"dataRelId":"1337"},{"id":"fea362e65aed11eaa47600163e0462f1","isDel":0,"createAt":1582978881401,"createBy":"sys","createName":"system","updateAt":0,"updateBy":null,"updateName":null,"name":"四级别胶质瘤病友群","image":"http://www.01luntan.com/ly_img/admin-4913ab79-2043-46fc-a414-16a42dfa7ffc.png","url":"https://jq.qq.com/?_wv=1027&k=59WG3X0","type":2,"webType":2,"sortNo":3,"dataRelType":1,"dataRelId":"1337"},{"id":"2c8d1cf55aee11eaa47600163e0462f1","isDel":0,"createAt":1582978958433,"createBy":"sys","createName":"system","updateAt":0,"updateBy":null,"updateName":null,"name":"三级胶质瘤病友群","image":"http://www.01luntan.com/ly_img/admin-ceb2db2b-f723-45ee-9020-0696492faaab.png","url":"https://jq.qq.com/?_wv=1027&k=5Mb7kti","type":2,"webType":2,"sortNo":2,"dataRelType":1,"dataRelId":"1337"},{"id":"70cc5e055aee11eaa47600163e0462f1","isDel":0,"createAt":1582979072932,"createBy":"sys","createName":"system","updateAt":0,"updateBy":null,"updateName":null,"name":"低级别胶质瘤病友群","image":"http://www.01luntan.com/ly_img/admin-77ff1e91-0d73-4ed5-a62b-6d0e300746ab.png","url":"https://jq.qq.com/?_wv=1027&k=51qVSBp","type":2,"webType":2,"sortNo":1,"dataRelType":1,"dataRelId":"1337"}],"lyBar":{"id":"1337","isDel":0,"createAt":1483430657181,"createBy":"system","createName":"system","updateAt":0,"updateBy":null,"updateName":null,"userId":null,"name":"胶质瘤","type":102,"twoCode":"http://zhao01.com/zly_img/zly_wx.jpg","image":null,"provinceId":null,"cityId":null,"illId":"6a325ddbbb5f11e6a61c00163e04584d","hospitalId":null,"keyWord":null,"totleTopic":0,"barDesc":null,"discussBarType":null,"metaSearch":"{\"channels\":{\"病友社区\":{\"description\":\"为病友提供:中医胶质瘤论坛_病友交流平台坛，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"中医胶质瘤论坛_病友交流平台_病友论坛\",\"title\":\"中医胶质瘤论坛_病友交流平台_病友论坛\"},\"治疗\":{\"description\":\"为您提供:病友的治疗经验等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"胶质瘤怎么治疗_胶质瘤保守治疗_胶质瘤治疗方法\",\"title\":\"胶质瘤怎么治疗_胶质瘤保守治疗_胶质瘤治疗方法\"},\"症状\":{\"description\":\"为您提供:质瘤复发的症状_胶质瘤早期症状_胶质瘤的症状有哪些等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"质瘤复发的症状_胶质瘤早期症状_胶质瘤的症状有哪些\",\"title\":\"质瘤复发的症状_胶质瘤早期症状_胶质瘤的症状有哪些\"},\"并发症\":{\"description\":\"为您提供:胶质瘤术后并发症_胶质瘤术后后遗症_胶质瘤手术后遗症等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"胶质瘤术后并发症_胶质瘤术后后遗症_胶质瘤手术后遗症\",\"title\":\"胶质瘤术后并发症_胶质瘤术后后遗症_胶质瘤手术后遗症\"},\"饮食\":{\"description\":\"为您提供:胶质瘤饮食禁忌_胶质瘤病人饮食_胶质瘤吃什么好等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"胶质瘤饮食禁忌_胶质瘤病人饮食_胶质瘤吃什么好\",\"title\":\"胶质瘤饮食禁忌_胶质瘤病人饮食_胶质瘤吃什么好\"},\"病因\":{\"description\":\"为您提供:胶质瘤怎么引起的_胶质瘤怎么形成_胶质瘤怎么得的等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"胶质瘤怎么引起的_胶质瘤怎么形成_胶质瘤怎么得的\",\"title\":\"胶质瘤怎么引起的_胶质瘤怎么形成_胶质瘤怎么得的\"},\"病友求助\":{\"description\":\"为您提供:胶质瘤有治愈的吗_胶质瘤早期能治好吗_良性胶质瘤能治好吗等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"胶质瘤有治愈的吗_胶质瘤早期能治好吗_良性胶质瘤能治好吗\",\"title\":\"胶质瘤有治愈的吗_胶质瘤早期能治好吗_良性胶质瘤能治好吗\"},\"预防\":{\"description\":\"为您提供:吃什么预防胶质瘤_怎么预防胶质瘤_如何预防胶质瘤等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"吃什么预防胶质瘤_怎么预防胶质瘤_如何预防胶质瘤\",\"title\":\"吃什么预防胶质瘤_怎么预防胶质瘤_如何预防胶质瘤\"}},\"description\":\"为您提供:脑部胶质瘤病因_脑部胶质瘤能活多久_脑胶质瘤症状早期症状_胶质瘤病友的治疗经验等相关信息，让病友在便捷的求医路上不花一分冤枉钱。\",\"keywords\":\"脑部胶质瘤病因_脑部胶质瘤能活多久_脑胶质瘤症状早期症状\",\"title\":\"脑部胶质瘤病因_脑部胶质瘤能活多久_脑胶质瘤症状早期症状\"}","adInfo":null},"isLikeThisTopic":null,"lastTopics":[{"id":"24461","isDel":0,"createAt":0,"createBy":null,"createName":null,"updateAt":0,"updateBy":null,"updateName":null,"userId":null,"title":"癫痫突发警惕胶质瘤","content":"

胶质瘤每天的发病率约为3-8/10万人，是一种源自于神经上皮的恶性肿瘤，多数学者认为是由于先天的遗传高危因素和环境致癌因素相互作用所致，如果没有癫痫病史，突然的癫痫发作一定要警惕是胶质瘤所致。一些胶质瘤特别容易被误诊为癫痫、老年痴呆、脑血管疾病等疾病而延误了最佳治疗时机，还有老人出现反应迟钝、单侧肢体麻木等症状也要及时进行排查是否是胶质瘤。

癫痫发作最常见的表现为突发四肢或者单侧肢体抽搐或者突发失神，这里的癫痫是因为胶质瘤导致的颅内占位效应所致，跟一般的癫痫不同，当患者有癫痫发作时，一定要把周围的危险物移走，等自行缓解，平日里可以通过抗癫痫药来进行控制，必要时需要接受医院的治疗，通过解除肿瘤病灶来从根源解决这一问题。目前脑部CT和核磁共振是胶质瘤最重要的诊断手段，脑胶质瘤的治疗，手术仍是其主要治疗和术后的放化疗辅助治疗，但是近年来，随着影像学和显微外科新技术、基因免疫学的快速发展，胶质瘤的诊疗水平已经得到了明显的提高，期待有一天能彻底治愈胶质瘤！

\"癫痫突发警惕胶质瘤\"

上图是解放军总医院第一附属医院傅相平写的《脑胶质瘤解密》，希望能帮到更多的患者，同时胶质瘤解密总群成立，傅相平教授也会定期在群里为大家免费解答疑惑，患者或者患者家属也可以在群里互相讨论，全程不收取任何费用哦。

\"癫痫突发警惕胶质瘤\"

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","barId":"1337","topicTypeId":null,"topicThemeId":"1035","readLevel":0,"files":"","clickNoLikeCount":0,"clickLikeCount":0,"clickCount":0,"score":0,"partCount":0,"replayCount":0,"publishStatus":0,"publishTime":0,"isCream":null,"canReply":0,"shareUrl":null,"foodCouponVal":0,"emailNotice":0,"permission":0,"zlyShare":0,"status":0,"sort":0,"highlight":0,"highlightEffectTime":0,"digest":0,"digestEffectTime":0,"top":0,"topEffectTime":0,"closed":0,"stamp":0,"icon":0,"bgcolor":null,"fontcolor":null,"favtimes":0,"isAdopt":0,"adoptId":null,"sortDate":0,"metaSearch":null,"rn":1},{"id":"11365","isDel":0,"createAt":0,"createBy":null,"createName":null,"updateAt":0,"updateBy":null,"updateName":null,"userId":null,"title":"胶质瘤发病部位不同症状也不尽相同","content":"

\"胶质瘤发病部位不同症状也不尽相同\" 

 

胶质瘤根据肿瘤程度不同，一般分四级，级数越高，恶性程度越高，决定肿瘤生长速度的快慢、症状出现的早晚和预后效果，会出现以下不同的情况，找良医网带大家一起来学习一下：

 

一、胶质瘤不同部位的症状

 

1、中脑肿瘤

该病症是由于出现肿瘤而阻塞导水管，在早期可出现颅内压增高症状。也有首发症状为精神和智力改变，这可能与网状结构受累有关。

 

2、桥脑肿瘤

该症状多见于儿童，占全部脑干肿瘤半数以上。早期儿童常以复视、易跌跤为首发症状;成年人则常以眩晕、共济失调为首发症状。90％以上病人有颅神经麻痹症状，约40％病人以外展神经麻痹为首发症状，随着肿瘤发展出现面神经、三叉神经等颅神经损害和肢体的运动感觉障碍。

 

3、延髓肿瘤

首发症状常为呕吐，易被误诊为神经性呕吐或神经官能症，特别是成年患者。病人可有不同程度头昏、头痛，然后较早出现后组颅神经麻痹的症状，症状如吞咽困难、进食呛咳、讲话鼻音、伸舌不能等。

 

二、胶质瘤常见症状

 

1、眼球不能上视

因颅压增高可使患儿出现双侧眼球内斜视，俗称“对眼”或“斗鸡眼”。还有的患儿逐渐出现眼球不能往上看，也预示着脑内松果体区存在肿瘤的可能。

 

2、复视

就是我们常说的看东西两个影子，重影等，这是因颅压增高导致外展神经不完全麻痹引起。

 

3、头颅增大

多发生在婴幼儿，因此期小儿颅缝未愈合或愈合不紧，颅内压增高可致颅缝分离而使头围增大。这种头颅增大常不如先天性脑积水明显。

 

4、眼歪口斜伴有走路不稳

该症状经常提示，可能为脑干胶质瘤。

 

5、意识障碍或精神异常

严重意识障碍(如昏迷或半昏迷等)常为脑疝所致，而颅压增高严重的患儿可表现为淡漠、乏力及嗜睡等，需引起留意。据找良医网统计的国外资料显示，儿童脑瘤患者有人格改变者约占半数，有行为异常者约占到50％左右。多数表现为呆滞，对玩耍不感兴趣，易疲乏，沉静寡言或易激怒。

 

6、头痛

多数头痛为颅内压增高所致，少数病例可因肿瘤直接刺激硬脑膜而出现局限性头痛。

 

　找良医网温馨提示：胶质瘤可导致患者死亡，对于患者而言，应该对病情有一定的了解，这样才能随时清楚的认识自己身体状况，进行相应的预防措施。最后，找良医网祝大家能早日康复，有个好身体！

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胶质瘤是什么瘤

","barId":"1337","topicTypeId":null,"topicThemeId":"1033","readLevel":0,"files":"","clickNoLikeCount":0,"clickLikeCount":0,"clickCount":0,"score":0,"partCount":0,"replayCount":0,"publishStatus":0,"publishTime":0,"isCream":null,"canReply":0,"shareUrl":null,"foodCouponVal":0,"emailNotice":0,"permission":0,"zlyShare":0,"status":0,"sort":0,"highlight":0,"highlightEffectTime":0,"digest":0,"digestEffectTime":0,"top":0,"topEffectTime":0,"closed":0,"stamp":0,"icon":0,"bgcolor":null,"fontcolor":null,"favtimes":0,"isAdopt":0,"adoptId":null,"sortDate":0,"metaSearch":null,"rn":181},{"id":"28691","isDel":0,"createAt":0,"createBy":null,"createName":null,"updateAt":0,"updateBy":null,"updateName":null,"userId":null,"title":"贝伐单抗副作用有哪些","content":"

请问打贝伐，您一点没出现副作用吗？医生说有脑出血的风险。用了贝伐会掩盖肿瘤的，核磁不准？贝伐单抗副作用有哪些？贝伐也是治疗胶质瘤的化疗药吗?前些年我都没有听说

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\"儿童神经胶质瘤的临床表现有哪些\"

呕吐：是儿童颅内肿瘤最常见的症状。儿童脑瘤有呕吐者占72%至73%。呕吐多数由颅内压增高引起，多数病例呕吐并伴有头痛或头晕，呕吐表现为喷射状，与饮食无关。病初呕吐常发生在清晨，以后随着病情发展则可发生在任何时间，呈间歇性和反复性发作。部分患儿呕吐可伴随有腹痛，故常被误诊为胃肠道疾患，应引起注意。

 

头痛：多数头痛为颅内压增高所致，少数病例可因肿瘤直接刺激硬脑膜而出现局限性头痛。学龄儿童可以告诉家长自己头痛，而婴幼儿常不能表达头痛的情况，仅表现为阵发性烦躁和哭闹不安或用手抓头、击打头部等。

 

走路不稳：因为脑瘤发生在小脑或脑干者多，其功能和人体平衡有关，病儿由会走路退化为走路东倒西歪、醉汉步态，严重者可站不住、坐不稳，完全丧失活动能力，同时可见手握东西不稳，或持物左右摇晃，这都可能是小脑有肿瘤的征兆。

 

视神经乳头水肿：是颅内压增高的重要征象。视神经乳头水肿是否出现及程度取决于肿瘤的性质、部位及病程的长短。因小儿颅内肿瘤恶性较多，位于中线及后路窝者多，故早期引起脑脊液循环梗阻而致颅内压的增高。脑干肿瘤的视乳头水肿不明显或在病程后期才发生。儿童视乳头水肿易伴有出血，常较快发展为继发性视神经萎缩，故儿童脑瘤到医院就诊时有视力减退者相当常见，其中有些患儿甚至近于双目失明。

 

眼球不能上视：因颅压增高可使患儿出现双侧眼球内斜视，俗称“对眼”或“斗鸡眼”。还有的患儿逐渐出现眼球不能往上看，也预示着脑内松果体区存在肿瘤的可能。

 

眼歪口斜伴有走路不稳：常常提示可能为脑干胶质瘤。

 

头颅增大：这是小儿颅压增高的特点之一。多发生在婴幼儿，因此期小儿颅缝未愈合或愈合不紧，颅内压增高可致颅缝分离而使头围增大。这种头颅增大常不如先天性脑积水明显。 　　复视：即视物呈双影，这是因颅压增高导致外展神经不完全麻痹引起。表现为双眼内斜视，俗称“斗鸡眼”。但自幼就有眼球内斜者除外。

 

意识障碍或精神异常：严重意识障碍（如昏迷或半昏迷等）常为脑疝所致，而颅压增高严重的患儿可表现为淡漠、乏力及嗜睡等，需引起注意。国外资料显示，儿童脑瘤患者有人格改变者约占半数，有行为异常者约占到50%左右。多数表现为呆滞，对玩耍不感兴趣，易疲劳，沉默寡言或易激怒。

 

颈部抵抗或斜颈：如果在头痛的基础上发现小儿颈部僵硬，或颈部斜在某一姿势，这是由于位于后颅窝肿瘤向下延伸或小脑扁桃体下疝致颈椎管内压迫或刺激上颈神经根所致。

 

癫痫发作：儿童神经系统疾病的癫痫发生率是相当高的，但相对于颅内肿瘤来说，它的发生率较成人低。但在不发热的情况下发生癫痫时也应考虑有肿瘤的可能性。生长发育迟缓或加速：颅内肿瘤可以影响儿童内分泌功能。颅咽管瘤的病例多数表现为发育迟缓（身材矮小及外生殖器不发育等）;松果体区畸胎瘤的部分患儿可有生长发育加快，90%以上为男孩，7至8岁时体重可接近百斤及外生殖器发育如成人。还有，垂体瘤的生长激素腺瘤可致巨人症，有的患儿10岁身高可达1.8米以上。

 

多饮多尿：经常在门诊看到长期诊为“中枢性尿崩症”的患儿，最后因为视力减退甚至失明才确诊为鞍上生殖细胞瘤。患儿烦渴，不停地喝水，有时甚至每日喝水、排尿达到8000至10000毫升，尿的颜色像自来水一样。

 

性早熟：有人统计，婴幼儿的性早熟有1/3表现为第二性征发育，半岁即来月经或生殖器勃起等。


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想必胶质瘤患者以及家属对于胶质瘤治疗费用也是非常关心的，毕竟胶质瘤是一个非常严重的，需要长期治疗的疾病，所以经济这方面也是很重要的。对于胶质瘤治疗费用是根据病情来决定的，胶质瘤根据WHO分型分为1-4级，1-2级胶质瘤预后相对比较良好，治疗费用相对低些，而3-4级预后往往不良，相对治疗起来会更麻烦，费用更多些。

一般胶质瘤会选择常规的手术治疗和术后的放化疗来进行控制，对于单纯的胶质瘤手术费用会在5万左右，这个是手术很顺利的费用。术后需要配合放化疗来做辅助治疗，对于放了的费用会在4-5万，当然这个需要根据胶质瘤的等级，还有病人自身的情况来制定方案，费用会有所浮动。化疗的话大多数会选择在家口服替莫唑胺来控制，这个费用的话也是需要根据病情来决定，比如一些低级别的患者可能需要3个疗程就够了，也有些需要长期化疗，那么一个月的费用大概是1万左右，也就是一个疗程的费用。当然也会有一些低级别胶质瘤患者年龄小于40岁，可以在手术后不做任何治疗就能有不错的效果，需要支付一个手术费用即可，当然胶质母细胞瘤这种高等级的患者，尽可能做手术和术后放化疗治疗，效果往往不会很明显，平均寿命只有1年左右，治疗起来花费也大，所以大部分家属会选择让患者带瘤生存，可以大大减轻经纪上的压力。

\"胶质瘤治疗费用\"

上图是解放军总医院第一附属医院傅相平写的《脑胶质瘤解密》，希望能帮到更多的患者，同时胶质瘤解密总群成立，傅相平教授也会定期在群里为大家免费解答疑惑，患者或者患者家属也可以在群里互相讨论，全程不收取任何费用哦。

\"胶质瘤治疗费用\"

","barId":"1337","topicTypeId":null,"topicThemeId":"1028","readLevel":0,"files":"","clickNoLikeCount":0,"clickLikeCount":0,"clickCount":0,"score":0,"partCount":0,"replayCount":0,"publishStatus":0,"publishTime":0,"isCream":null,"canReply":0,"shareUrl":null,"foodCouponVal":0,"emailNotice":0,"permission":0,"zlyShare":0,"status":0,"sort":0,"highlight":0,"highlightEffectTime":0,"digest":0,"digestEffectTime":0,"top":0,"topEffectTime":0,"closed":0,"stamp":0,"icon":0,"bgcolor":null,"fontcolor":null,"favtimes":0,"isAdopt":0,"adoptId":null,"sortDate":0,"metaSearch":null,"rn":49},{"id":"14444","isDel":0,"createAt":0,"createBy":null,"createName":null,"updateAt":0,"updateBy":null,"updateName":null,"userId":null,"title":"大脑胶质瘤","content":"

什么是大脑胶质瘤呢？大脑胶质瘤就是脑胶质瘤。

它的定义是源自神经上皮的肿瘤统称为脑胶质瘤，占颅脑肿瘤的40%~50%，是最常见的颅内恶性肿瘤以及原发性中枢神经系统肿瘤。在原发性脑瘤中，胶质瘤由于治疗难度大，致残、致死率极高，被称为癌后。

其具体的致病因素现在是不明确的，也是没有定论的，多数学者认为它是由多种因素综合作用的结果。包括先天的遗传高危因素环境的致癌因素以及相互作用所导致的结果。最基本的致病原因还是基因的突变，由于基因的突变导致胶质瘤的发生和发展。

\"大脑胶质瘤\"

找良医网温馨提示：如有身体不适，请及时就医！


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4级本身就是最恶性的肿瘤，现在它已经无法进食，说明它已经到了晚期，这种情况通过静脉输注补充营养，延长了生存期。后期可能出现比平时更严重的症状，如昏迷、嗜睡、痴呆和智力迟钝。我家老爷子胃口还行，今早吃了两个蒸鸡蛋羹，半碗稀粥，不过这几天有点嗜睡，我爸今早咳了痰出来，今天精神好了很多，吞咽功能受压迫，只能吊营养水，或者插胃管。


\"胶质瘤晚期不吃不喝\"

欢迎扫描二维码加入QQ群，听听病友们怎么说，听听医生怎么说



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4级本身就是最恶性的肿瘤，现在它已经无法进食，说明它已经到了晚期，这种情况通过静脉输注补充营养，延长了生存期。后期可能出现比平时更严重的症状，如昏迷、嗜睡、痴呆和智力迟钝。我家老爷子胃口还行，今早吃了两个蒸鸡蛋羹，半碗稀粥，不过这几天有点嗜睡，我爸今早咳了痰出来，今天精神好了很多，吞咽功能受压迫，只能吊营养水，或者插胃管。


\"胶质瘤晚期不吃不喝\"

欢迎扫描二维码加入QQ群，听听病友们怎么说，听听医生怎么说



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 群里有没有，胶质瘤晚期不吃不喝，那种状态的病人啊，我家爸爸就是不吃，我爸爸几乎都到了后面了，吃东西都不行，就是喉咙有痰，医生说吞咽功能也有问题，关键是他自己又不配合我们，我还爸爸我感觉好特殊，不知道轻重，听不懂他说话还打人，嘴巴吃东西也不利索，感觉就像是他自己不能支配自己的言行一样


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